hi all,

For those of you who live in South Florida, this information that I will share with you might be of interest to you and your family.

A few years ago, I decided it would be best for me to find a local doctor who I could see in addition to visiting my transplant center which is only one hour a way. I found the best hospital nearby which happens to be Cleveland Clinic located in Weston Florida.

With it's outstanding reputation I decided to give them a try. I was quite surprised at the level of care I received. The maximum time you wait to see a doctor is about 5 minutes. I waited under five minutes to see my new pulmologist. After a year of only two visits to their pulmonary team, I was told by the department chair of pulmonary that they were bringing on a CF consultant.

I met with Dr. Hadeh last week and was very impressed. It is wonderful to have a doctor who understands CF and transplant who is also close by to where I live. What peace of mind I now have. He will work with my transplant team if needed. In the meantime, I remain quite healthy.

If you need a doctor in the Broward County Florida area, check out Cleveland Clinic in Weston and ask for the pulmonary dept, Dr. Hadeh. You can mention my name if you like

LOVE,
Risa aka Hostess Rise' from Transplantbuddies.com

http://my.clevelandclinic.org/...ic_florida_weston.aspx

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contact Rise': transplantbuddies@gmail.com

Transplant Buddies.com
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 Jackson Memorial Hospital, Miami, Florida

Hi Risa, I'm so glad you LOVE your doctor. I love to read testimonials. In treating my colon cancer, it was so helpful to hear what people thought of the doctor and now I have sent him many patients.
I hope we can soon add a way to give testimonies and helpful stories here.
I am working on it!

Love, Jeanne

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Administrator/Moderator

Hi Risa,

I had to do a double take, Cleveland clinic in Florida ??? lol

Anyways, I am so happy your are healthy & happy with your new CF doctor !! It means so much to have that confidence in your dr.

Take care & stay well joni

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Joni 58 y/o f w c/f Married 20 years, Mother of 4 sons, Mima to Richard (4y/o) & Samuel (born 3/22/10)

Hi Jeanne and Joni

You know me, I always share good stuff.

If every doctor that I meet is like Dr. Hadeh, I will be very happy.

I have my criteria of what I look for in doctors and he met everyone of them.

Jeanne- I am trying to encourage my members to talk about their doctors too. It is not easy.

Best of Success!!
Rise'

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contact Rise': transplantbuddies@gmail.com

Transplant Buddies.com
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 Jackson Memorial Hospital, Miami, Florida

It must be the same Cleveland Clinic of Ohio as a satellite. "Good" models are often replicated in any field (like hamburgers) but in health care it often seems detrimental for patient care issues. Cleveland Clinic is an extreme but I think laudable exception. I've been in the business for 37 years.

A year ago (it is still relevant and valid a year later today) Slate.com wrote a descent primer of this concept of salaried doctors. Although it is headed with President Obama's picture and name, IT IS NOT A POLITICAL article. Drs salaried.
It is so-o-o-o-o-o important to not only trust and like your doctor (you don't need cf to find that out) but for the competence to be there. Great expose for you to mention your find. Everyone should contribute to the cf center satisfaction resource data base. Glad I got into the blogs tonight so I could hear from you "Energygal".
Peter

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Leave it better than you found it.

hi all


my doughter has cf,we live in Iran ,here we dont have cf center,I am worry about my girl she is only 9 months,I dont know what will happen for her,even I hadnot hear about cf before,I realy want help her I afraid of future,
sorry about my bad english .

Hello soheila321

I tried to send you a private message but your name did not appear on the list.

What treatments are available to you all?

Looking back on all the years i battled with CF the most important tools that I can suggest to you are airway clearance, exercise and good nutrition. Enyzmes are very important for her digestion.

You can email me at transplantbuddies@gmail.com

Take care and give your daughter lots of Love

Send my best to her
Rise'

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contact Rise': transplantbuddies@gmail.com

Transplant Buddies.com
Cystic Fibrosis- dx at 2yrs. -2nd double lung tx-05 Jackson Memorial Hospital, Miami, Florida