I wasn't sure what else to title the post- but it is sure hot here! This weekend we had a family reunion- my grandparents from Pittsburgh and my uncle and aunt came in. My grandparents opted to stay in a hotel and my aunt and uncle stayed with us. It was really fun, and also really exhausting. The reunion was two hours away in Baltimore- we had a huge BBQ and stayed until after dark. I missed my middle of the day doses of Castin yesterday and Friday. It is so inconvienient to do and clean a neb three times a day- no matter how fast. My reaction to the Castin has not gotten much better and I can't seem to tolerate any other nebs (even albuterol) anymore either. I have to do an inhaler for the albuterol, but nebs make me cough beyond the point of throwing up. Needless to say I'm loosing my voice. I have a clinic appointment next week- so we'll see how bad things are. I'm guessing mid thirties? I did feel a little better the days I only did two doses. I feel like no matter what center I go to no one has any idea what the ***** they're talking about.

On Wednesday I got my drivers license. Tonight I drove by myself for the first time- to youth group, or as it turned out (I had forgotten it was this coming week) vacation bible school, which is nice because they still have a VBS for the highschool. It's a video series, and one "scenario" that unfolds during the week is a woman with end stage pancreatic cancer who is- through questionable ways of getting what she wants- cyrogenically frozen. It was the command "You shall have no other gods before me" with the way she lived her life. But some of the things she said just made me think about transplant, and really struck a nerve. Even if we aren't supposed to "play god" I brought up the point that where in the bible does it specify "Thou shalt deal with the ***** I your god have dealt you, and not alter your circumstances." We spent a good half hour talking about medical ethics. I am definately looking forward to this week though (and the person's house it's at has a pool)

I have to go do my Castin *again*. I hate that *****. With tobi I do have an increase in cough- but with Castin I just feel like *****. The even worse feeling is knowing that I'm stuck doing it.

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April, 17 years old w/CF and CFRD. "Life is what happens to you when you're busy making other plans" -John Lennon