So much for loosing weight-- I gained it all back. I was starting to get a touch more energy back then... I started to feel icky.

I am back having uterine issues again. My Ob/gyn is super hesitant to do surgery due to my CF. So.... I am left to live in misery. I am unable to leave my home and I am heading back to my old anemic self. I am worn out.... fatigued, weak and having small dizzy spells.

On top of this I noticed my staph is flaring up again-- boils are back. I hate boil care. I just hope they stay right where they are at and don't spread like they have in the past.

I emailed my nurse last night and asked her if I can do a tune up. I need to get back to a good place again. I will probably need another blood transfusion..... crossing my fingers and toes that I won't.

I loose my state health coverage at the end of next month-- better get all the IV stuff and hospitalization in before coverage is gone. Hubby is making too much money for sate help but not enough money for normal health insurance. We are hoping to find SOMETHING to replace the state assistance.

I am waiting to hear from the nurse....

I am also hoping they will do a hysterectomy during my tune up. Yank the problem out!! I want my life back. I want to be able to play outside, keep up with my housework, do some fun things with my family. Right now I am stuck on the couch or in the recliner. I am able to make simple meals before I get super fatigued and I am able to load and unload the dryer.... that is about it.

Will update when I hear from the nurse.

Never thought I would be hoping for a lock up. Guess I am truly in a bad place.

-------------------------
37 yrs old with CF (diagnosed at age 15)
Delta 508/2789 + 5G to A
CFRD and Enlarged Thyroid

((Hugs)) to you Carrie I hope you can get in before the month is out. Praying for you. Keep us updated....

Graves

Oh Carrie,

I am sorry you are going through so much

I think we all know when it is time for a tune-up & even though it is the last thing we would want to do, when you get to that point of knowing it is kinda a relief that you can make that decision yourself.

Take care & keep us posted joni

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Joni 58 y/o f w c/f Married 20 years, Mother of 4 sons, Mima to Richard (4y/o) & Samuel (born 3/22/10)

Sorry you're struggling. I hope the docs listen to you, and help you feel better soon.

Stacey

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Wife to David, Mom to Jordan 19 w/cf, Bronson 22 carrier & Mason 14 no cf

Sorry to hear you are going thru all this!!! Good luck with everything and keep us posted.

Angie

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Fourkidsmom
Step-mom to 18 yr old girl- no cf,
Mom to 17 yr old boy- cf carrier,
Mom to 9 yr old boy w/CF-DDF508, meconium ileus, G-Tube, port, diagnosed when I was 7 months pregnant
Mom to 8 yr old girl- no cf, but chromosome 9q 21.2 - 22.1 deletion & epilepsy, autism, sensory issues,global developmental delays,poor eyesight