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fourkidsmom's blog - New port |
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New port
Brady went to his CF doctor appt yesterday and we tried to access his port and it wouldn't work:-(....... He got his first port at 2 months old and it lasted 4 yrs and now this port has lasted 5 yrs 5 months- SO I guess we can't complain- it just stinks to have to have another surgery......
We go to talk to the surgeon next Wednesday and hopefully set the appt up before school starts.... hate for him to miss at the beginning of the school year. Other than that his appt went good- GAINED weight, and doing good:-) Hope everyone else is doing good as well:-) Angie ------------------------- Fourkidsmom Step-mom to 18 yr old girl- no cf, Mom to 17 yr old boy- cf carrier, Mom to 9 yr old boy w/CF-DDF508, meconium ileus, G-Tube, port, diagnosed when I was 7 months pregnant Mom to 8 yr old girl- no cf, but chromosome 9q 21.2 - 22.1 deletion & epilepsy, autism, sensory issues,global developmental delays,poor eyesight |
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Just to let you all know - we have been having issues with the port-- last 2 months had port a grams and a viagram 3 months ago-- my post kind of sounded like it just didn't work and we have to replace it....
------------------------- Fourkidsmom Step-mom to 18 yr old girl- no cf, Mom to 17 yr old boy- cf carrier, Mom to 9 yr old boy w/CF-DDF508, meconium ileus, G-Tube, port, diagnosed when I was 7 months pregnant Mom to 8 yr old girl- no cf, but chromosome 9q 21.2 - 22.1 deletion & epilepsy, autism, sensory issues,global developmental delays,poor eyesight |
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Hi Angie - always good to see a post from you. I'm sorry Brady has another surgery, but glad you got 5 years out of this port. It's great that he gained weight!!
Hope everyone else is well. I know you're always busy. Take care. Stacey ------------------------- Wife to David, Mom to Jordan 19 w/cf, Bronson 22 carrier & Mason 14 no cf 
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Hi Stacy- thanks for your reply:-)
Ha ha -- yeah you know I am busy thru facebook--lol good keeping in contact both ways:-) Have a great weekend! Angie ------------------------- Fourkidsmom Step-mom to 18 yr old girl- no cf, Mom to 17 yr old boy- cf carrier, Mom to 9 yr old boy w/CF-DDF508, meconium ileus, G-Tube, port, diagnosed when I was 7 months pregnant Mom to 8 yr old girl- no cf, but chromosome 9q 21.2 - 22.1 deletion & epilepsy, autism, sensory issues,global developmental delays,poor eyesight |
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