Health information found on or at blogs, forums, chats, or even search engine resources, may not be right for your medical needs;
always consult your healthcare specialist or CF Center when determining what course of care is best or safest for you. Disclaimer

Visit InfoServe for website backgrounds.
free glitter text and family website at FamilyLobby.com
PhotobucketPhotobucket Photobucket
Main site Main site Forums Blogs WIKI
JazzysMom's blog
JazzysMom's blog - CysticFibrosis.com - A resource for the community
Decrease font size
Increase font size
1 2 >> Next
December 1, 2009
  TUESDAY TIDBITS
Good Day/Evening My Dear Friends~


1) I prefer the door open on rooms (hospital, bedroom etc)

2) I use to own cowboy boots

3) I use to own a cowboy hat

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 12/01/2009 07:14 PM     TUESDAY TIDBITS     Comments (10)  

November 30, 2009
  MONDAY MEMORIES
I have tried & tried to remember something. The memory was not great to start & evidentally still influenced by last weeks drugs

I guess I will do another Thanksgiving memory. I grew up in a single widee trailer. When we did Thanksigving we didnnt have enough room in the Kitchen so we moved the furniture from the kitchen to the living room & vice versa.


In addition we added extra tables & chairs to accomodate everyone.

I remember sitting on my Dads recliner in the kitchen thinking it was the coolest thing to be doing LOL~

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 11/30/2009 03:07 PM     MONDAY MEMORIES     Comments (5)  

November 18, 2009
  HOLIDAY ADMISSION & HAPPY THANKSGIVING!
Some of you know that I have been having a rough time lately. I have tried oral abx & steroids. Both which helped to a certain point & that I seemed to be stalled, but was hoping to get through Thanksgiving.

Well I had a bad scare the other day that almost had me call 911 when I couldnt catch my breath yet by that night I felt fabulous. After talking about it with my husband (and lots of nagging from my dear friends) we decided to not risk another episode & get me admitted.

This, of course, meant I would be in the hospital for Thanksgiving which sucks, but if it means I can be home & feeling better for Christmas then its worth it.

I have been in during every holiday at some point in my life. Now as a Mom I hold out that it wont happen for Jazz's birthday or Christmas.

So we go down tomorrow morning. Jazz & Robert will still be going to my HS BFF house on Thanksgiving since kids arent allowed to visit because of the swine flu issue.

After school arrangements are made, monthly bills paid, laundry still being worked on, family all notified. Things are going to plan I guess!

I found out when speaking with the clinic that they moved the floor we go to which is the Pediatric floor. I have gone to the Coleman 8 floor for at least 30 years. They made that a Hospice floor & we are now ont he 15th floor.

My Nurse assured me that "everyone" move (nurses, volunteers, aides etc) & that its just a different floor. I am hoping maybe that since we will be twice as high....should I get a room near the Nurses Station that I will have better internet reception. Being that high hopefully less buildings will block the signal.

We will see.....

IF NOT......MISS JADA will be updating y'all. I expect to be in a few weeks. It will take a week or so of getting the airways opened up, rehydrated & the yuckiness of the meds hitting my system before any real progress can be made~!

SO....If I am not able to get on here, please enjoy your Thanksgiving. Dont feel bad for me. I am thankful to have the meds & caretakers to help me even if it has to be during the holiday.

LOVE TO ALL OF YOU! REMEMBER THOSE WHO WE LOST AS YOU SAY GRACE, PRAY FOR THEIR FAMILIES & PRAY FOR THOSE OF US STRUGGLING A BIT WITH OUR HEALTH NOW!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 11/18/2009 08:21 AM     How I am doing...     Comments (15)  

November 17, 2009
  TUESDAY TIDBITS
Good Morning Everyone!

1) I eat pearl onions at Thanksgiving because they were my Dads favorite

2) I eat everything else because its MY favorite LOL!

3) I think they should sell chicken & turkey skin seperately like they do the livers etc so just the skin can be made cripsy!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 11/17/2009 08:39 AM     TUESDAY TIDBITS     Comments (1)  

November 16, 2009
  MONDAY MEMORIES
Y'all thought I forgot didnt ya LOL! Well I almost did...

With Thanksgiving around the corner I thought I would share one thing from my childhood Thanksgivings.

Because there are 7 kids in the family my Mom would prepared 7 veggies that grew above the ground & 7 veggies that grew below the ground.

Now.....what are they you ask! Well lets see if between you & I we can list them all:

UNDERGROUND:

potatoes
yams
onions
beets
rudebager (sp?)
carrots

ABOVE GROUND:

corn
green beans
peas
squash
cabbage (cole slaw)

This is pretty much where I get stuck LOL!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 11/16/2009 06:34 PM     MONDAY MEMORIES     Comments (5)  

November 10, 2009
  TUESDAY TIDBITS
I am starting to run out of things to put in this. Not sure if the brain isnt working, if I am afraid of repeating myself (tho I think I have done that already) or if I am really that boring LOL!

SO lets try this:

1) My dogs are in a desperate need of a bath

2) There is a lot I want to do around the house, but am too cheap to spend the $$

3) Wonders what its like to be 100 & look back at all that has transpired in the world

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 11/10/2009 08:47 AM     TUESDAY TIDBITS     Comments (1)  

November 9, 2009
  MONDAY MEMORIES
This morning had the feel in the air that brought back a bitter sweet memory.

I was in the 9th grade & my goal for school that year was to get perfect attendance.

Now I had been in/out of the hospital over the years, but as a rule wasnt terribly "sickly" yet I didnt do treatments. I did take enzymes tho.

For some reason I had enough of missing school & was determined to have perfect attendance that year.

I remember sitting in Science class shivering from what I assume was a fever & barely able to breath. I remember thinking I can do this, I can do this.

I had no thoughts of the fact that I could be getting anyone else sick since IMHO it was "just CF" & not actual pneumonia etc. Yeah right....

I did it tho. I got my perfect attendance award in the 9th grade! It was no small task & it might seem stupid for putting my health at risk, but mentally/emotionally I needed to be "normal".

Now Jazmine asked me WHY I would push myself so hard when I felt so bad "just for school"..........to her being normal is being able to miss school & at the time being normal to me was being in school!

I always marvel at the few kids that graduate with perfect attendance. Did they not get sick or did they go anyway?

I mean out of 13 years of school.....not one day were they sick enough that they or their parents thought they should stay home? REALLY? LOL

So although I no longer have my Certificate of Perfect Attendance, it is acknowledge in my Senior year book and a piece of my memory.....no matter how small that I did it!

Be Well My Friend~

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 11/09/2009 08:04 AM     MONDAY MEMORIES     Comments (4)  

November 5, 2009
  MONDAY MEMORIES, TUESDAY TIDBITS & VENTING.....ALL IN ONE!
I was going to skip this week, but I couldnt so better late then never:

MONDAY MEMORIES:

The one thing that I didnt get from the house when my first husband & I split up was a picture of my Dad dressed up for Halloween. I can picture it perfectly. It was one of those older developed pics with the rounded corners.....no where near as clear as what todays cameras offer.

He was dressed as a woman from head to toe. He had a wig (big thing for my Dad since he was one of those guys who combed what hair he had from one side to the other), the dress, skirt, scarf, heals & of course......a purse!

I wasnt allowed to the party that they attended since it was adults only, but I remember hearing some stories. One of them being he went up to a dear friend of ours (whose Mom was like the only Grandma I knew) & sitting on his lap. My Dad planted a big old smooch onto Bill's face & back then it was that stick, thick lipstick that remained on Bill's face as a token of my Dads love for him.

Mom said he just worked those heals & swang that purse! He milked it & had a blast. He never did it before & he never did it again!




TUESDAY TIDBITS:

1) I prefer hot tea over coffee in the morning, but coffee is already made

2) I am in the mood for cornbread

3) I am getting closer to winning the lottery LOL



VENT:

My heart is aching again. As we know.....Lauren a/k/a LightNLife got her wings. She hadnt been open with us when she first joined. She struggled with that for a bit, but when she did. Boy did we learn a lot. Between her actual education & knowledge from that, her faith & knowledge from that, her experiences & knowledge from that & her Brad & knowledge from him.....we learned a lot.

My wounds are still very fresh from losing my friend, Ellie so this is very difficult for me. Lauren followed the same path as Ellie & I was trying to brace myself, but no matter what you do.....Its always a blow.

I am not scared as much as pissed off. I never use to be pissed off at CF. I use to just take it as it came. I guess with age & frequent issues that you start getting a bit bitter. You lose your tolerance & slowly go from accepting to annoyance to pissed off.....I havent quite reached the total, full force anger yet. I have no doubt its coming. It has to be.

Things here have been a bit crazy. Robert hurt his ankle on wet leaves last week & he returned to work yesterday only to be sent home. I realize that its only an ankle, but he is my rock. He is the one I lean on when I cant do things. Lately my lungs/airways are fighting me so as I try to straighten those out I was relying on him.

He still tries, but he is hurting so between us....its been difficult around here. I have been taking a lot of naps later in the day when I just cant go anymore. A few days after Robert got hurt, I was falling asleep in the chair while Jazz did her homework. Jazz told me to go lay down. I told her I couldnt because I still had to cook dinner.

My sweet little girl assured me she could handle cooking hamburgers so I took her up on it. I slept for 2 hours & she cooked dinner.

I knew that her interest in cooking would come in handy. Now to expand her menu LOL~

My Mom wants Jazz to come & stay at her house this weekend for Jazz to help her with things she cant do on her own. That is fine......Robert & I will order out & sleep!

So as many of you realize that the little things we should over look or think nothing of in the grand sceme of things can still build up......

I am trying to let it all go & just let those in my life know how much I adore & love them!

SO TO MY VIRTUAL & REEAL LIFE FRIENDS/FAMILY:

I love you! I wish you strength in whatever you are dealing with, I wish you peace during the hard times! Hugs~

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 11/05/2009 09:11 AM     MONDAY MEMORIES     Comments (9)  

October 27, 2009
  TUESDAY TIDBITS
Good Morning Everyone!


1) I had my first kiss when I was 10 years old

2) I would have failed my driving test at 16 if I got 1 more point off

3) I went to my first prom in 9th grade

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/27/2009 08:27 AM     TUESDAY TIDBITS     Comments (4)  

October 26, 2009
  MONDAY MEMORIES
Good Morning Y'all!

Today is a good Monday Memory because it is connected to my Dad. Today would have been my Dad's 91st Birthday!

*HAPPY BIRTHDAY IN HEAVEN, DADDY*

When my Dad turked 55 we had a surprise party for him. It was held at a friends bar/catering hall which has since been sold & renovated.

We were stopping there for a cocktail & then onto a friends for my Dads birthday dinner.

It was soooo hard not to spill the secret, but I didnt!

I remember sitting at the bar....yes we could do that back then. My Godmother & her hubby walked in. They lived quite a ways away & should not have been in that neck of the woods. They came through the front door of the bar instead of the back door where the party was.

So we thought for sure that the whole secret was blown. BUT Dad being Dad didnt think a thing of it. He thought they were just out for a ride & saw our car so stopped.

Our friends who owned the place said they were starting to redo the banquet room & wanted us to check it out before we left. So we wonder over the doors & when Dad opened them about 100 people yelled SURPRISE!

I dont remember anything else after that, but I know that Dad was 1000000% surprised LOL!

I can remember the exact outfit he & my Mom wore too....amazing the details!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/26/2009 09:34 AM     MONDAY MEMORIES     Comments (3)  

October 22, 2009
  I DID IT!
OK all you people that know me & have had the "joy" of speaking with me probably wont find this a shock


Today I have hit 15,000 messages on this site!!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/22/2009 09:00 PM     General Information     Comments (8)  

October 20, 2009
  TUESDAY TIDBITS
1) I appreciate my husband more every day

2) I wish Jazz would out grow Halloween (terrible I know)

3) I would like to cook a family Thanksgiving again at our home.....wont be up to it tho

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/20/2009 08:25 AM     TUESDAY TIDBITS     Comments (4)  

October 19, 2009
  MONDAY MEMORIES
I guess with Halloween coming that I will focus on the few costumes that stand out in my head as a kid. I wasnt overly big on Halloween, but there were a few times that I really remember.

One time I was in Girl Scouts & dressed up as a clown. We had apple bobbing during the party the scouts had.

I actually got an apple & when I was give the towel to dry my face off.....I ended up wiping all my clown makeup off.

It never dawned on me not to wipe dry.

I remember being SOOOOO upset because it was BEFORE the costume judging!

**sighs**

Maybe that is why I dressed as a clown for Jazz's elementary school years

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/19/2009 08:05 AM     MONDAY MEMORIES     Comments (3)  

October 13, 2009
  TUESDAY TIDBITS
Good Rainy, Post Columbus Day, Tuesday Morning Y'all!


1) I hate being rushed tho I hate being late more

2) I love to carve pumpkins

3) I love candy corn

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/13/2009 08:40 AM     TUESDAY TIDBITS     Comments (5)  

October 12, 2009
  MONDAY MEMORIES
Happy Columbus Day Everyone!


This morning brought back memories of my Dad going to work.

Today Robert is suppose to be off, but they have a state inspection & asked him to work so he said yes because that gives him double time on the books which he uses as days off should he need it when I am sick etc.

Anyway.....it was cold this morning & I was tucked in cozy as he was up bright & early getting ready. Jazz got up to go to the bathroom as he was getting ready & instead of returning to her room, she came into bed with me.

I always loved when she use to do that, but its been awhile unless she was sick.

My Dad use to be out of the house by 5am & I often use to wake up when he was getting ready & would return to bed in his spot of my parents bed.

It was such a relaxing feeling. I can even remember his "smell"! That mixture of soap, old spice & a certain odor that the mail held. He was a mail carrier for those that didnt know.

They had a king size bed and I was quite short so that is a huge difference (not in the story tho) since Robert & I just have a full size and Jazz is taller then me.

Either way......my baby girl is cuddled next to me like I use to do with my Mom. Keeping her Dad's side toasty for him

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/12/2009 08:41 AM     MONDAY MEMORIES     Comments (2)  

October 7, 2009
  WEDNESDAY WONDERS
I wonder...

how much electricity is used around the world by CFers ONLY for their medical treatments (nebs, vest, 02 etc)

OR going with the same theme

how much of the landfills are from the vials of albeuterol, pulmozyme, the strips you take off of the tegaderm to expose the adhesive.....I know when I do my garbage while on IVs.....I feel sorry for the garbage guys LOL!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/07/2009 12:20 PM     WEDNESDAY WONDERS     Comments (5)  

October 6, 2009
  TUESDAY TIDBITS
Good Tuesday Morning to My Online Family!


1) Prefer long sleeves (dont like my skinny arms)

2) Wear a smaller shoe then my 11 1/2 year old daughter

3) Love to rollerskate & am good, but stink at ice skating & it scares me LOL~

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/06/2009 08:34 AM     TUESDAY TIDBITS     Comments (4)  

October 2, 2009
  The Way a Community should be....IMHO
I have spoken about a fundraiser & band concerts that we have gone to over the years. The same one that my sis, Chris & I would dance in the streets.

Its something that you really have to experience in order to appreciate it, but soon you will be able to see my sis & I in action.

In the meantime take a look about this little community & the volunteer band with its supporters.

When looking at the video....take notice of the gal dancing with the tan pants on near the kids dancing. That would be my sis

Enjoy!

CALLICOON CENTER BAND

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/02/2009 12:12 PM     General Information     Comments (1)  

October 1, 2009
  A Day for Remembering & Celebrating!
Today marks a few things for my family.

Its one of my brothers 59th birthday (Happy Birthday Howard), it would have been my parents 43rd Wedding Anniversary, but the one that I am most proud of..........


Its my hubby's ONE year anniversary of being cigarette free! He requested sausage, peppers & onions for dinner & brownies for dessert to celebrate!

Easy enough for me LOL!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 10/01/2009 08:41 AM     General Information     Comments (8)  

September 30, 2009
  WEDNESDAY WONDERS
Have you ever had those moments where you are doing something routine like doing your hair, washing the dishes, sweeping the floor etc & you feel like you are dreaming?

Its almost like you are watching someone else do it & feel "alone" then your mind wonders.....I wonder how many other people in the world are doing this exact same thing right now, wondering the exact same thing????

Am I really that odd.....come on & speak up LOL!

-------------------------
Jazmine; 11 yrs old; daughter; sister

 Post a Comment    

    Posted By: JazzysMom @ 09/30/2009 09:16 AM     WEDNESDAY WONDERS     Comments (5)  

1 2 >> Next

free glitter text and family website at FamilyLobby.com