Many of you may be interested in Rajiv Mehta's excellent presentation at the conference in San Diego:

Reframing Health

I can imagine many of the attendees (all interested in MobileHealth and HomeHealth) became inspired to work harder to lessen the daily struggles for those with CF.

Thanks Rajiv for presenting CF Awareness to those who can make a difference and of course...

Thanks to LouLou for sharing her day!

Jeanne

-------------------------
Administrator/Moderator

I got a new IPAD about a month ago. I had given away my laptop a few months ago and thought it could replace it.

I am not an Apple person so I was immensely disappointed to start. It felt uncomfortable to hold and it doesn't have the real keypad.

I guess the reason I am writing this today is because I have done a 180, even to the point of "needing" to tell my CF community about this revolutionary tool.

I use it with 3 of my grandkids all the time and I made a little FLIP 2 minute movie.
IPAD

I think the reason it would be so good for this community is after you pay the initial $500.00 then the apps for the kids (anyway) are free or .99 or $1.99.

They are so creative and educational. Julia at 5 and a half has learned so much math and Jack practices his letters and Gianna loves the songs and stories.

As a teacher, I can see this tool is revolutionary and with this CF community it would fit as many of you home school or because the children may miss school due to tune-ups.

I see this as a fun way to keep the children on track.

I know the initial expense is huge and that's why I am daring to hope through sponsors we can give away lots of IPADS.

For now, if you are a contributing member with over 1,000 messages please let me know if you would like to be on the IPAD giveaway list!

Jeanne

-------------------------
Administrator/Moderator

I was asked to write about us in the Pharma Phorum and I wanted to explain our e-Patient community in a way the Pharmaceutical companies could understand. Some of you will recognize this metaphor...from a few years back.


Learnings From the Wizard of Oz

I'll be expanding on this as I am motivated and inspired by so many of you in your blogs to write more. I can tell by people like LauLau, it is a talent, an art form and most especially a GIFT.

Jeanne

-------------------------
Administrator/Moderator

Edited: 06/17/2010 at 10:38 AM by Imogene

How do I describe the meetup in Manhattan? Incredible...

From the moments I meet Stacey and David and Jane at the motel...to saying goodbye at the airport this morning....

I think our souls needed this to remember Melissa and oh so many other friends, to see and touch each other from Oklahoma to Massachusetts to upstate NY and Maryland, NJ and Long Island we came ...to feel and laugh these days

to enjoy each other and to visit so many beautiful places, the Great Falls, Eagle Rock, Manhattan from top to bottom and all around and through Rockefeller Center and then back to NJ and "down the shore" and back up the coast

to end with a beautiful party at Naomi's and John's on Lake Hopatcong....and I am sure i missed something...but the memories are rich and savory!

Here is a small remember it collage...just a few of the happy moments of laughter and tears, please enjoy!




Thanks Jonie for making this a happening!

-------------------------
Administrator/Moderator

If you are a dad and your daughter has CF or if you are a car!

Zoe's DAD and the Toyota with over 600,000 miles


If you are a young woman with CF

Our own liteNLife may she Rest in Peace!


If you are a young woman with CF and your baby also has CF....

My Day by one of our members!

My Day
7:00am wake up,

On the way to the bathroom a coughing fit usually requires me to catch my breath and rest.

7:00am - 7:15am - prepare a high caloric shake since many of my AM meds are to be taken with food yet eating a breakfast consisting of solids will result in vomiting during my AM physical therapy session.

Take 6 pills.

7:15am - 7:30am - assemble nebulizers and insert medication.

7:30am - 7:50am - inhale albuterol (bronchial dilator) via nebulizer.

7:50am - 8:35am - inhale hypertonic saline via nebulizer.

Often times at this point I've coughed so much that I must change my underpants due to incontinence so I stop to get dressed for the day.

8:35am - 8:50am - get dressed, brush hair.

9:00am - 9:45am - Strap on The Vest for physical therapy to help loosen mucus in
my lungs. The session stops every 5 minutes to allow me to cough and spit the loosened mucus.

9:45am - 10:05am - inhale Pulmozyme via nebulizer.

10:05am - 10:35am - inhale Tobi antibiotic via nebulizer.

10:35am - prepare and eat breakfast of cereal with fruit and milk. Take pancreatic enzymes x3.

10:45am - Inhale Advair steroid, wash mouth out to prevent oral thrush (yeast
infection). Brush teeth.

11:00am - 11:40am (Cleaning process takes 15 minutes of my active participation)

Disassemble all 4 used nebulizers. Clean nebulizers using warm soapy water then sterilize them by leaving them in a bath of hydrogen peroxide for 30 minutes. Create sterile water by boiling for 15 minutes.

Put a load of laundry in the washer.

Drain hydrogen peroxide and rinse parts with sterile water. Put parts aside for use when they are dry.

11:45am - 12:30pm - place phone calls regarding scheduling medical appointments, paying medical bills or clearing up health insurance coverage issues.

12:30pm - 1:00pm - prepare and eat lunch consisting of leftover's, a sandwich or a frozen entrée. Take pancreatic enzymes x 3 and noon pills (4 total)

1:00pm - 1:15pm - clean breakfast and lunch dishes.

1:30pm -3:30pm - nap

3:30pm - eat a snack (yogurt or granola bar)

3:45pm - 4:15pm - Exercise lungs using Acapella handheld device to help loosen mucus in my lungs.

4:00pm - 5:00pm - Run an errand in the car (such as go to pharmacy to pick up prescriptions, make a deposit at the bank, etc.)

5:15pm - Husband and son return home from work/daycare. I watch son while husband prepares dinner.

6:00pm - Eat dinner with pancreatic enzymes x 3 and evening pills (4 total)
7:00pm - Put son to bed.

8:00pm -8:15pm - assemble nebulizers and insert medication.

8:15pm - 8:35pm - inhale albuterol (bronchial dilator) via nebulizer.

8:35pm - 9:20pm - inhale hypertonic saline via nebulizer.

Often times at this point I've coughed so much that I must change my underpants due to incontinence so I stop to get dressed for the night.

9:30pm - 10:15pm - Strap on The Vest for physical therapy to help loosen mucus in my lungs. The session stops every 5 minutes to allow me to cough and spit the loosened mucus.

10:15pm - 10:45pm - inhale Tobi antibiotic via nebulizer.

10:45 - eat a quick snack, take bedtime pills (4 total) and brush teeth.

11:00pm - go to bed.

3:00am - coughing attack wakes me.


Medication list: July 2008

Ultrase MT20 3/meal, 2/snacks (some sort of pancreatic enzyme since age
2-1/2 years old, not sure when I started Ultrase specifically.

Zithromax 500mg 1 pill in PM on M, W & F - 2003

Singulair 10mg 1Tab/day (evening) - 2002

Allegra 60mg 1Tab 2x/day - 2008

Flonase .05% 2 sprays ea. nosril once daily - On and off since 1994

Mephyton 5mg 1 Tab/evening - 2007

Advair 250/50 1 Inhalation 2x/day - 2002

Sodium Chloride Solution 3% Use 5-7mL via aerosol 2x/day - 2007

Duoneb Use 5 mL via aerosol 2x/day - 2005

Pulmozyme 1 ampule inhaled/day - 1994

SourceCF ABDEK 2 pills/day - 2008 (previously ADEKs since 1992)

Tobi Every other month (off 6/08, starting mid 7/08) since 1998
(previously Tobra since aprox. 1988)

Ortho Tricyclen 1 pill each evening (7/07)


*Other supplements:*
Barlean's Healthy Mom Omega 3 EPA/DHA 1 pill/day 2007


New Chapter Super Critical Antioxidants 2 pills/day 2006

Iron Glucinate 1 pill/day 2008

New Chapter Zinc 1 pill/day 2006

Garden of Life Primal Defense Probiotic 1 pill 2x/day 2006

B-Complex 1 pill/day 2008

-------------------------
Administrator/Moderator

I got the above pictures on a recent trip to the Smithsonian. I thought the combo of roses and poppies worked for this Memorial Day Weekend. Thanks Andy Warhol!

This poem by John O'Donohue has a special meaning for me as I remember all the heroes who have gone before us this weekend, including many members of cysticfibrosis.com:

On the death of the Beloved


Though we need to weep your loss,
You dwell in that safe place in our hearts,
Where no storm or night or pain can reach you.

Your love was like the dawn
Brightening over our lives
Awakening beneath the dark
A further adventure of colour.

The sound of your voice
Found for us
A new music
That brightened everything.

Whatever you enfolded in your gaze
Quickened in the joy of its being;
You placed smiles like flowers
On the altar of the heart.

Your mind always sparkled
With wonder at things.
Though your days here were brief,
Your spirit was live, awake, complete.

We look towards each other no longer
From the old distance of our names;
Now you dwell inside the rhythm of breath,
As close to us as we are to ourselves.

Though we cannot see you with outward eyes,
We know our soul's gaze is upon your face,
Smiling back at us from within everything
To which we bring our best refinement.

Let us not look for you only in memory,
Where we would grow lonely without you.
You would want us to find you in presence,
Beside us when beauty brightens,
When kindness glows
And music echoes eternal tones.

When orchids brighten the earth,
Darkest winter has turned to spring;
May this dark grief flower with hope
In every heart that loves you.

May you continue to inspire us:
To enter each day with a generous heart.
To serve the call of courage and love
Until we see your beautiful face again
In that land where there is no more separation,
Where all tears will be wiped from our mind,
And where we will never lose you again.


- John O'Donohue
From:
TO BLESS THE SPACE BETWEEN US
(entitled BENEDICTUS in Europe, Ireland and the UK)

-------------------------
Administrator/Moderator

This past weekend, the Cystic Fibrosis Learning Center Continuum of Care hosted a conference at the Hyatt Regency in Jersey City.

CysticFibrosis.com was proud to be a silver sponsor.



The conference targeted healthcare professionals from CF care centers and included the entire CF healthcare team as well as the center's affiliated hospital staff to include pulmonologists, nurses, nurse practitioners, registered dieticians, respiratory therapists and social workers.

The target audience included family members/caregivers of patients with CF that will benefit from hearing real-life stories about other CF patients and learning about the latest therapies and techniques from CF healthcare professionals.



Many members and especially lurkers from our site stopped by and were familiar with our e-patient community and the over 2 million messages which have been an anchor for those looking for an on-going conversation of support education and hope since 1996.

We also met many of the center health care professionals and discussed our dreams of presenting more video programs based on your FAQs.

As examples a doctor who heads a transplant team stopped by on Thursday evening and came back to give us his card on Friday and tell us more about the work his center does.

A respiratory therapist who is developing a new PEP treatment and has success in his NJ clinic was sharing the process of how he was giving birth to this new idea.

A technology developer who is working on a texting program for teenagers to become more adherent stopped by to let us know he learns a lot from our site.

We spoke with the sponsors, Solvay is now Abbot Labs and other enzyme companies (AXCAN and DIGESTIVE CARE) are anxiously awaiting FDA approval of their enzymes.

Foundation Care has a very exciting Patient Management Program that we cannot wait to hear more about.

Nick Lombardi, the organizer of the event and a CF Dad, did a wonderful job putting together a thoroughly professional and elegant conference.

Parents and Family members came from all over to attend the conference for free!

I hope more of us can be part of it next year.



Jeanne

-------------------------
Administrator/Moderator

NACF Conference October 2009

Minneapolis

Ennio, Peter and I arrived in Minneapolis for the North American Cystic Fibrosis Conference last Wednesday afternoon.



The first thing we always notice at the NACF Conference is how well they are run by the leaders of the CFF always with organization and focus.

The energy and commitment of the 3400 health care professionals who arrive from all over the world is immediately evident as they hurried to all the sessions.

We met with old friends and made some new ones bringing the ground swell from the patient community at cysticfibrosis.com.

This year we found that whether we spoke of you as a group or by name, so many people already knew you...they read the forums and know your stories.

We met with Lisa Greene of our site and her program Love and Logic.

Jerry Cahill spoke to us about his inspiring videos.

We had lunch with Dr. Joan Germana and celebrated Pulmozyme's 15 year anniversary. We met with Clinical Trial Teams.

We fell in love with the beautiful city of Minneapolis as we walked the
Sky Walks that connect the hotels, buildings, malls and art galleries of this lovely city.




Above all, we listened with excitement to Dr. Francis Collins, the new head of the NIH (National Institute of Health), as he laid out the future of healthcare and science connecting it strongly to his past work with cystic fibrosis. you can download the complete Power Point:

Dr Collin's Power Point

Francis tied together his work searching for the CFTR in the 1980's to his work solving the puzzle to find the Human Genome.

Now, scientists all over the world use all the information that was learned from scientists and especially all the patients who were involved in Clinical Trials as integral pieces for the cure of 7000 human diseases!

Listen as this talented, scientists sings and picks his guitar for us again:!



Dare To Dream

Of course we were sure to sail up the Mississippi and to feel the art and music of Minneapolis!
Stay Tuned for as I try to capture some of the hopeful, instructional stories from the Conference along with pictures of this the beautiful city.



Jeanne

-------------------------
Administrator/Moderator

Edited: 10/19/2009 at 03:16 PM by Imogene

This morning Peter and I set out along the NJ Turnpike...the corridor between New York City and Philadelphia to attend Diane's funeral. It doesn't sound like a big deal but add up all the potential traffic and we decided to leave at 4:45am. It was smooth sailing at that time, only we arrived in Philly with time to spare. We had a little time to check out Diane's neighborhood.

We had breakfast at a corner café...what are scrapples you may wonder...we sure did!
They are a Pennsylvania Dutch breakfast specialty made with pork scraps.



Outside the café was a bed of roses:



We found a primeval like forest nearby in PennyPack Park.





We easily found St. Cecilia's Roman Catholic Church.




The service was the Mass of the Resurrection and was very beautiful.

A theme throughout the service was "The Good Shepherd." It seemed to fit, Diane loved her animals and there was a slideshow of Diane's life and of course her animals as we entered the Church.

We noticed immediately her NorthEast Penna Muscle Car Community was there with their cars.

The Scripture Readings were from the Book of Job

"His words were etched in stone"... I thought immediately of the close to 4000 messages Diane left with us.

The Gospel was from John: "In my house there are many dwelling places"...

Watching the tears stream down the faces of the muscle guys...I knew she left her mark dwelling with them as with us...we're all in good company!


The Eulogy read at the end of the service contained quotes from her CF on-line community..."Breathe Free".

A beautiful and sad love letter was read from lostboy ...Dale, her handsome man.

I was so happy to meet him. He made sure we were included in the ceremony!

But the last words came in the form of a letter from Diane...

"Be Comforted in knowing I did everything I wanted to do, she mentioned Dale and her animals and her family and...I had my muscle car...Toodles"

I think she even alluded to the fact that she hoped no one drove here with an import!

Uh Oh!




Black Cherry didn't have a chance next to Diane's car...I hope these pictures do it justice...









I think we have been blessed with Diane's presence more that we know.

She says it best:



I watched one MuscleMan grab another and sob:

"It won't be the same."

I think we all agree...

Jeanne

-------------------------
Administrator/Moderator

Edited: 09/24/2009 at 07:40 PM by Imogene

The High Line New York City



Peter and I took a walk along the High Line Park along the west side of New York City.





The original track lifted the industrial trains off the main roads of the city.

The High Line

was built in the 1930s, as part of a massive public-private infrastructure project called the West Side Improvement. It lifted freight traffic 30 feet in the air, removing dangerous trains from the streets of Manhattan's largest industrial district. No trains have run on the High Line since 1980. Friends of the High Line, a community-based non-profit group, formed in 1999 when the historic structure was under threat of demolition. Friends of the High Line works in partnership with the City of New York to preserve and maintain the structure as an elevated public park.







Today the Park, which opened in June of this year, is a walk along the old tracks with a wild flower garden set in between the tracks.



Even the honeybees found a home here:



I love these last days of summer!

Jeanne

-------------------------
Administrator/Moderator

Renewal of Vows...

Such a beautiful ceremony...

The procession...Joni and her four handsome sons!



Joni looking RADIANT!



Joni and Mike



Graves and I had a beautiful day...first at the ceremony in Long Island and then the reception....which was delicious and a tribute to our beautiful

Joni!

Many blessings to Joni and her family!

Jeanne

-------------------------
Administrator/Moderator

Enjoy our trip to NYC and the Battleship Iwo Jima in the slideshow above!

Memorial Day, 2009

Jeanne

-------------------------
Administrator/Moderator

Edited: 05/23/2009 at 04:16 PM by Imogene

It's a prayer~









Abundance~

Jeanne

-------------------------
Administrator/Moderator

Edited: 05/12/2009 at 10:20 AM by Imogene

Dear e-Patients:

From my Florida trip...photos and secrets...

We've been working hard at Medrise and these bees reflect our buzyness!



CysticFibrosis.com is our Lighthouse.



In the vast sea of Healthcare and theWeb...



We are Visionaries!



We're taking the plunge!



We're not afraid...







Stay tuned



For New Beginnings!



Jeanne

-------------------------
Administrator/Moderator

Meeting at CysticFibrosis.com Offices in Cedar Grove, NJ

March 28, 2009

I picked up Graves at Penn Station at 9:00am Saturday morning...just the 20 minute ride back to NJ was exhilarating, we had so much to talk and laugh about....when we got back to the office/house, we were still waiting for Jada, Mel, and Jane, so I took him on a little tour of Soprano Land, just a mile up the road...This is New Jersey!

I had Jersey Boys on the Ipod...and I was ready for lunch with this amazing assembly of Key Opinion Leaders from CysticFibrosis.com.



Graves said it best, when he noted all the different groups represented at this meeting.

Graves, from Long Island, studying to be a Respiratory Therapist, holding close, the memory of his dear Christine w/CF, who died in 2006. He told us how little he knew about CF until after she died and he joined our site.

Jada, (4 year old) Zoe's Mom, from Georgia (on the Florida border), was visiting Mel, (JazzysMom), 41 with CF. Both of them made the hour and a half ride down from Liberty, NY.

Jada told me at dinner, how important Mel has been, in her journey, to give the best care possible to Zoe...she calls her for "everything".

Many of us know Mel has been at CysticFibrosis.com since the beginning...an original member 13 years ago! She has been the "first responder" to so many posts. She gives directions, consolation, support, education and hope, through almost 14,000 messages! She is an anchor for me too. She's a little crazy too...as seen in our rocketship!



Jane (a 4 hour ride from Massachusettes) came with her hands full of beautiful desserts. She is an artist~ so each strawberry was a work of art, the Paula Dean dessert, orange butter cream...was my favorite!

We have prayed for Jane's two teenage boys w/CF through some unknown bug they had a few years back and celebrated them through Eagle Scout projects and gone on vacation with them! I know as more and more teenagers join our site, Jane is such a good role model and mom!

As a great surprise to me, Dalton and Donna, Jada's oldest son and his wife came too! They live in New Jersey now. Dalton and Donna have been great siblings to Zoe and have been instrumental in her care.

During lunch, we called Terri (KayleesGrandma), who was at Cory's funeral in Illinois, representing all of us who couldn't be there.

The characters were in place. We ate lunch and

Had the tour of CysticFibrosis.com.

I introduced a new website we have been working on for Health Care Providers.

I will let you all know more about this new project in future blogs.



Then we took off to NYC and one of my tours...only trouble was the original car (Suburban Physical Therapy Taxi) broke down!

But Jane let us use her car...and we were off again...over the George Washington Bridge...



And down through Manhattan...
Past Columbia Medical Center...
Through Harlem, past the Apollo Theater, down 5th Avenue and Museum Mile, around Central Park, past Rockefeller Center, over to Times Square, back to 5th Avenue, past the Empire State Building, down to see

Joni at St. Vincents Hospital in Greenwich Village. Joni seemed a little surprised and who wouldn't be? We got to spend an hour with her, and hopefully lightened her day! We were so happy to see her and hope and pray she is better soon!

Then back in the car and down to St. Paul's and Ground Zero...now it was time to return and amazingly, my crowd loved Canal Street and all the little street vendors...but we were on a mission to get Graves back to the train on time...

He ended up getting out of the car...and RUNNING to the train...this is one of my favorite memories of the day...GRAVES CAN RUN!!

Peter joined us for dinner at Italianissimo, a local Italian restaurant in Caldwell, NJ. This restaurant has been featured several times on the Sopranos...and seemed to fit the dinner that was requested...

NJ is BYOB so Jada was thrilled! Notice, the wine flowed as did the conversation...we got there at 7:30 and closed the place at 11! We did miss you Graves and Terri and Joni!




Wow, what a memory...and what a lot of enthusiasm and gifts each of us, here at CysticFibrosis.com, bring to each other, meeting each other's needs, healing our brokenness and finding support, education and hope!

Jeanne

-------------------------
Administrator/Moderator

Edited: 03/29/2009 at 05:41 PM by Imogene

letsRockCFem and me for lunch

RockCFem...came to NYC today and we met in SoHo....a fun shopping and dining area of Manhattan.
She joined Peter and me and our son Andrew.



We had a great lunch at the Cubana Café on Thompson Street...



We even had a serious moment over our café con leche



These pictures may capture only a tad of her fantastic energy and personality!





You never know what quite to expect...but it is sure to make you smile:



Her converse sneakers are all the rage...




On to San Francisco and 1 DNA Way~

Jeanne

-------------------------
Administrator/Moderator

For President's Day

We spent the weekend in Washington DC....

Many people who know me know I LOVE to drive...
The New Jersey Turnpike is a great place to start...



The Gothals Bridge and lots of industry....





Traveling with Peter, I see the Meadowlands too...the diving ducks and red hawks...



In south Jersey, there are plenty of farmlands...



Visiting the The National Museum of the American Indian was definitely a highlight of Washington, DC...



Inside the museum ....the canoes are a favorite of Peter and mine...as we love canoeing the rivers of New Jersey...



I loved this sculpture of George Washington and Skenandoah the wampum keeper of the Oneida Indians. A group of Oneidas walked more than 400 miles from Oneida Territory, in what is central New York, to Valley Forge, Pennsylvania, carrying corn to feed the starving soldiers. Polly Cooper, the Oneida woman in the middle taught the soldiers how to cook corn- one of the Three Sisters, the sustainers of life, along with beans and squash.



George holds the two row wampum belt signifying the desire of each of the nations not to interfere in each others internal affairs.

There are beautiful sculptures throughout the museum like:

The raven steals the sun:


And the Capitol Building was a mere photo opportunity away.



On to California next week....

Jeanne

-------------------------
Administrator/Moderator

Edited: 02/18/2009 at 04:37 PM by Imogene

Coming Soon~

Our guys are working on a wall for us to post one line messages...we'll have it on the homepage soon (maybe tomorrow)...love Ennio!

Help we need a name....

I think of a

Wailing Wall

Throw it on the Wall at Facebook

A simple Chat for one-liners

Gene Wall

Gene Pool

Crowd Find

Happenings

Daily Musings

Way In

Meet and Greet

Instant Message

CF Wall

Notes

Board

Greetings...

Can you think of a name? Do you like any of these?


Jeanne

-------------------------
Administrator/Moderator

Edited: 02/10/2009 at 12:57 PM by Imogene

Continuing the tour of New York City...

Washington Square Park is one of 1700 parks in New York City. The original land for the park was given to the slaves by the Dutch. The slaves "warded off" the Indians thereby protecting lower Manhattan.

Joni and I have enjoyed a walk around this park, because St. Vincent's CF Center is close by.



The 1880's must have been a very French time in NYC.

The city celebrated the 100 year anniversary of George Washington's presidency by constructing a memorial arch, designed by Stanford White.



in the popular neighborhood of Greenwich Village...



General Washington is on the right side...



The arch was based on the design of the Arc de Triomphe in Paris. That arc was designed to celebrate the generals of the Napoleonic Wars. It is the Arc of Peace...and big enough for a bi-plane to fly through it in 1919!


Picture from Wikipedia

5th Avenue ends at the Washington Square Park entrance.



Washington Square Park is currently being renovated...but don't miss the fountain in the center of the park and the beautiful trees including famous "hanging elm" the oldest tree in Manhattan!

An interesting winter tree with a friend at her roots...






The park is a warm and cozy gathering place (9 acres) especially for the New York University students whose university surrounds the park.

A great place for a picnic...



Another French footprint in the city...a gift from the French in the 1880's is the

Statue of Liberty celebrating the Declaration of Independence and the friendship forged between the two countries during the Revolutionary War.

Coming Soon...

Jeanne

-------------------------
Administrator/Moderator

The Wall

From the African Burial Ground National Monument on Duane St in lower Manhattan

I love the Wall.



It reminds me of the Vietnam Memorial in Washington, DC designed by Maya Lin. I'll be visiting that memorial again for Valentine's Weekend.

This wall contains 419 ancestral remains in hand carved mahogany coffins lined with kente cloth from Ghana.




I've been visiting Facebook lately to get updates on Hermit. They have a wall there..I find short cryptic notes there among my friends...

Lauren likes her haircut...

Beverly is a Sweet Adeline...

I love the wall concept...I asked Ennio (he's back!!!) if we can have a wall at cysticfibrosis.com...he said yes...I'm not surprised.

Notes for my wall...

Jeanne had to cancel her dinner with Jerry Cahill last night due to weather

Jeanne met with an advertiser for a new enzyme.

Jeanne wonders why the FDA approved the enzyme but not the name of the enzyme...possibly causing another 3 month delay for the launch of the enzyme...


Jeanne took her daughter, Sarah, to Organic Avenue in the East Village...she tried organic juices.

Jeanne is talking to a company that targets genetic mutations this morning....

Guardianship



As I stand before this icon on the African wall...so many people come to mind but

Today...

Victoria Howard comes to my mind first as a model of Guardianship....there are so many others....


Jeanne

-------------------------
Administrator/Moderator

Edited: 02/04/2009 at 09:38 AM by Imogene